Thoughts on “Maybe” Divorce

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“As you become more attached to yourself you will become less attached to the outcome,” my therapist says with a smile.

Sometimes I wonder about this statement. Although it seems true enough as I continue this journey of the “maybe divorce” sometimes I wonder if this attaching to yourself, this honoring your self and your desires, really means at some point that you just dial back the caring…maybe you just begin to not care anymore because the fight for keeping your marriage has cost you too much personally. Your anxiety has increased to the point that everyday you wake up wondering “if this is the day.” And while once I believed that this thought might kill me, now, sometimes, I just wonder if it would be a relief for it is difficult to live with a man who no longer loves you the way he wants to and the sadness plays out like recessed shadows etched deep into his face.

I know when this began two years ago I felt like the world was coming to an end. It seemed as though my heart was being ripped out of my chest and I couldn’t sleep at night. After all this time my anxiety about divorce and what it would do to my children has decreased but is it because I am working really hard on integrating all aspects of myself and discovering more about who I am or is it because I am shutting down? Perhaps I see the train wreck in the distance, so I move away, because I don’t want to witness the carnage firsthand. I also don’t want to deal with the repercussions that it might have on two boys with autism and one with mental health issues much less the fact that four of my children are adopted and have already suffered so much loss in their young lives.

And so I continue to work on myself. To find corners of sunlight and to open the shutters wide to let the sunshine flood into my life. I work to make myself more aware of what I am doing and why I am reacting in the ways that I do. I am practicing ways of building up my resilience and incorporating peaceful ways of thinking as a habit that I can rely on to keep me centered. And I am trying to learn not to allow negative self-talk rule my head and my heart even though it still wants to.

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So if this work, if all this trying to find better ways of attaching to myself, is going to make me wiser, happier and more peaceful; I am all for it. For I am becoming a better me and I am finally doing all of this psychological work for greater self understanding of what makes me tick.  And if the “maybe” divorce comes to pass I think I will be in a much better position to retain my own dignity and grace during the process. And for me, that is what is important.

So be it.

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Rare Days

Some days just turn out better than you think they will. B went home with two of the kids while Andre stayed with me. This can be a bit of a challenge because basically Andre likes to be left alone…completely alone. Here we are at the ocean basking in the coolness of the water’s fresh breeze and Andre just wants to stay in his room all day. As a person with autism, finding a spot to feel comfortable is his main priority. Dealing with people and the newness of places and situations are the crux in his craw. I did manage to get him to walk along the cliffs one afternoon but he complained the entire time and made the trip somewhat miserable. He does that when he is doing something he doesn’t want to do…he makes it taxing and a chore in hopes that you will never ask him to do anything like that with you ever again.

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So today, I woke him up and told him we were going to a town about two hours away to take the train. He told me he didn’t want to go on the train but wanted to visit the museum. Unfortunately, we got there 10 minutes after the museum closed so instead we went to lunch, walked around town and went into some shops. It really wasn’t his kind of day but on the way home he said, ” I really had a good day with you Mom. Thank you.” Needless to say, I almost fainted for he rarely lets you know if he appreciates something much less tells you he enjoys your company. It was one of those rare moments that is so surprising and lovely that it suddenly feels as if life has picked you up and carried you away to Nirvana. Everything is right with the world and your place in it and after a weekend in which B talked separation, it was such a nice place to be.

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Later this evening I went down to the Lodge. It was one of the situations that you are trying to talk yourself into doing. Should I stay home or leave. Which will it be? The stay at home option almost won out but I eventually, after a heated debate with myself, chose to go to the bar. I took my drink outside to one of the comfy Adirondack chairs and parked myself in it to watch the sun disappear over the ocean while pinks, golds and yellows filled the sky. Flocks of pelicans flew in V formation past the cliffs while Sid the Great Blue Herron strutted his stuff. The temperature was perfect, the scenery divine and I had the place to myself…until a tall good-looking man about my age appeared out of nowhere. As it turned out he was from the local Buddhist temple complex and as we sat and talked I became “enlightened.” I have always strayed to the edge of Buddhist philosophy for years while attending Christian church at the behest of my husband putting my own religious convictions on the back burner. The talk that this gentleman and I had soothed my soul and it felt nice to be appreciated and admired by a nice man again.

Yes, some days take you by surprise. Today was one of those rare and glorious days and it felt just like a day when my garden is in full bloom!

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http://odiyan.org/

 

Negative Chatter

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My inner spirit has yet to be rekindled. I may have written about the importance of it a couple of weeks ago but for some reason I have yet to feel the spark. I have not been taking the time for me and as a result negative chatter is filling the air around me and is so thick I could cut it with a knife.

THOUGHT #1

“Why keep trying? He will never love you like he did again.”

THOUGHT #2

“Yes, I could have bet on the fact that I would be unable to reach B while he was at dinner with FRED and by golly I was right. Why is this? What is going on here?”

THOUGHT #3

“Can I ever trust again?”

Yep, my brain is suddenly like a chipmunk after a peanut…darting here, there, everywhere…but no place healthy or good for my soul.

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My headmaster just keeps churning out negative thoughts day in, day out. But why?

Is it because I am still so unsure of myself?

Is it because I am so unsure of my relationship?

Is it because I feel I am not being true to myself?

Is it because increasingly I feel like abandoning ship because I feel like nothing I do is ever right?

Or is it because I am just plain tired of the constant pushback that two boys with autism seem to relish every chance they get?

Whatever it is I know that I need to work hard to get rid of it. Because all this negativity is like wallowing in a shit-filled cow barn. If the methane doesn’t kill you the stink certainly will, coupled with the fact that there is so much of it piled around that I am afraid that I will get sucked down into it …never to return.

So, I am trying to implement past strategies that have worked.

I am shouting in my head “CANCEL, CANCEL,CANCEL” when a negative image or thought appears. I then look around and make a running commentary of what I see:

“Wow the sky is blue today. Look at that big fluffy cloud overt here. It looks so clean and white”….and so on.

Today I meditated and practiced visualization. I am trying to exercise more.

Yet, nothing is removing that chipmunk, whose cheeks are filled so full of negativity, from my brain. It’s kind of like having Alvin singing “Christmas Time Is Here” in your head 24/7 meaning that the A on Alvin’s shirt doesn’t just stand for his name.

 

I read this piece to my therapist. She says the rekindling has not begun because I am not using the proper things to build the fire with. The first being self love which has diminished so much since the “I might want a divorce.” Somehow that love of self has wafted away like the smoke that comes from lighting a fire. It no longer feels like I need a bit of kindling. Instead, it feels like I need to burn down an entire forest to revive my inner spirit.

My therapist also says that living with no air conditioner in 110 degree heat 43 C also fries your brain. She says she suspects this is what I am actually suffering from today. But all I know is the part for the air conditioner won’t come until Monday and someone better hide the matches because something is about to go up in smoke!

 

 

 

 

 

 

Eat Chocolate Cake

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The school called today

Andre didn’t turn in his homework

He said he burned his book

I don’t think so but…

I eat chocolate cake while I contemplate the situation.

The other school called about Paul

The teacher tells me there is a group issue

Paul is missing assignments

I will check and let you know….but first

I eat chocolate cake before digging around in his room

I go to the school to discuss the situation

I let all involved know

That Andre will be staying after school in the tutoring room

Everyday until all the assignments are done

He clings and claws at me

He baby talks and pouts

I escape and walk around campus

And eat that emergency piece…

Of chocolate cake

That I tucked in my purse

Really this is getting too much to manage

Maybe I should turn to booze

And give up the chocolate cake

We get home

Paul is upset because I insist that he does his chore

That he did not do before he went to school

Man, that chocolate cake looks good…tastes better than it looks

Two boys with autism

One deep dark chocolate cake

Almost gone…

Autism makes you fat!

Home Alone Horror

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Home Alone is one of the most seen movies in the world. Although it was made years ago, you can always find it on one channel or another because it is a family favorite. It is funny and it makes you laugh out loud…unless it comes to roost in our own life. Then it ain’t so funny!

B and I were heading home from New York the other day after a wonderful weekend anniversary trip. Though we had been through two years of a “maybe” divorce, this weekend felt like we were in love again. That is when the sitter texted me.

I JUST LOOKED AT MY WORK SCHEDULE AND I HAVE TO WORK TONIGHT. I WILL NEED TO LEAVE AT 10 p.m.

“THAT IS FINE,” I texted back. “WE WILL BE HOME FROM THE AIRPORT AROUND 10:15 .SO IT ISN’T REALLY A PROBLEM”…until it was.

Standing in the crappy line with a GROUP 6 boarding ticket while annoying, is not a problem. Usually. Unless, you step on everyone’s toes and piss them off, while trying to maneuver yourself  back to the cockpit to get your suitcase checked because all the overhead bin space is taken. Placing your belongs in the overhead bin…no problem…for the GROUP 1-5 passengers. GROUP 6…FORGET IT! Fastening my seatbelt was easy as pie as my anti-anxiety “fear of flying” pill kicked in.  Everything was going as expected until these words were uttered by the cute and spunky stewardess whom everyone suddenly looked like they wanted to slap:

” PLEASE RETRIEVE YOUR BELONGINGS AS EVERYONE WILL NEED TO DEPLANE. THERE IS A PROBLEM WITH THE EMERGENCY SLIDE AND GROUND MAINTENANCE HAS TO BE CALLED TO FIX THE ISSUE.”

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Now I will confess I try to keep positive in these types of situations. I mean, after all, it is better to be riding on a “fixed” plane than a “broken” one. But an emergency slide? Really? I mean how often are they used anyway?. Hell, I thought, if there turns out to be an issue, I will gladly stand at the open slide-less door and just toss people out onto the ground below. Problem fixed. Now, let’s get this freaking show on the road!

A collective groan so loud it nearly popped the rivets holding the plane together ensued. This was followed by a sound reminiscent of a herd of lumbering and pissed-off elephants starting back up the gangway.

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Faces that had been smiling only 5 minutes previous were now pinched and drawn. The variety of cuss words I overheard was astounding and during the race to the customer service center several people nearly lost there lives. Frankly, there was not enough free alcohol in the entire terminal that could cheer up this downcast and angry crowd.

As B and I stood in the wrap-around line waiting to talk to that poor unlucky agent who had been plucked by the previous 50 ticket holders; it finally dawned on us that we had a problem. A serious one.  We only had an hour layover after we landed before we were to catch our final plane home. Unfortunately, this was the last plane for the night we were soon to discover.  Suddenly, were having our own HOME ALONE moment and nothing about it was the least bit entertaining.

Now being home alone is okay in our household during the day but certainly not overnight. We knew that Andre wouldn’t care as long as he could lay around in his underwear eating chips without being bothered by anyone. Change is hard for kids with autism but as long as there is food available and no one around to boss him around; Andre was happy.

Paul started crying over the telephone. The unknown is difficult for him but an unexpected change of plans is a catastrophe. . Let’s just say this didn’t fit into his scheme of things and the breakdown started.

Gracie…well, she isn’t one for being away from her Mommy and Daddy…especially at night. But we knew she would suck it up if she had to.

And so we started calling everyone we knew as the minutes started ticking away. 10 minutes late. 20 minutes. 40 minutes. 50 minutes…which was the point of no return. We were now officially screwed. Finally, an hour and 40 minutes later we lifted off unsure of what the future held…except that most likely Children’s Protective Services might be giving us a visit in the near future.

As nicely as I could I explained our situation to the stewardess. HOME ALONE.  TWO WITH AUTISM. MELTDOWN.

“Would you like a beverage?” she responded cheerfully.

I was tempted to ask for a double scotch on the rocks but decided that a drunk absentee parent was most certainly worse than a sober one when talking to government officials. Therefore, I took my seat,  bought the WI-FI service for $29.95 and sent out a plea for help on Facebook. I am happy to report that by the time we landed, I had three friends offer to help and a neighbor who informed me that she would take the kids to school. These are the times in life when “do unto others as you would have them do onto you” suddenly takes on a whole new meaning.

Flying five hours across the country we still had hope that we would make our flight but it was not to be. So we took our food vouchers and ate dinner in the airport, then took the shuttle bus to our hotel and finally settled in to watch a movie. When we turned on the t.v, guess what was being shown? Yep, you’re right… it just happened to be HOME ALONE. That apparently is the way we roll.

 

 

 

Las Vegas

Driving to Las Vegas is always interesting. Between the weird signs of half-naked women, the smiling cactus and the odd out-of-the-way museums; most of the time I feel like I have been  drinking before I hit the bar.

There is the Borax Museum sitting on the hill in the middle of nowhere. Even better, the airplane graveyard where huge jets sit waiting to be scrapped or built into a home for some eccentric old lady. And then there are the potholes. Dodging them keeps you away during this rather boring drive. Unfortunately, for our friend she landed in one yesterday that completely shredded her tire out in the middle of the dessert…at night… which is the thing nightmares are made of.

There is also the last alphabetical road in America on the drive…Zzyzx Road which lays out in the middle of the Mojave Desert. There used to be a hot springs hotel out that way but it is no longer like many of the ghost towns that inhabit the area.

And now we are here on Vegas time. It is cold and due to the weather the mountains are covered in snow. Such a contrast and so beautiful against the now brilliant blue skies.

Of course, traveling away from home increases Andre’s anxiety to a point that at times it makes me want to find the highest mountain and jump off of it. Yesterday was tough. Those are the days in which I wish autism could be turned off like a light switch. Watching him struggle breaks this Mommas heart while driving her a little crazy. The sadness at watching him and the stress I feel when he tries to pull my hair because of it can be overwhelming at times. But in the end after he is settled things return to our “normal” and life goes on.

 

 

 

Best Qualities As A Mother

UPDATE

Since B stated 18 months ago that he might want to divorce we have done a lot to try to save our relationship. This includes a Marriage Encounter weekend, his therapist, my therapist and a joint marriage therapist. I have decreased my yelling to a trickle, have kept the house in good shape and have lost weight. Frankly, things had been improving for close to a year but lately I have noticed that we have been regressing. More grudges, less sex, 66% less dialoging, etc. I am a very intuitive person and I “feel” these changes and recognize them for what they are and lately I have been feeling really anxious about them.

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I have never been an anxious person even when I have had plenty to be anxious about. For 57 years I have kept most of that anxiety stuff swept under the rug. But lately, it has occurred to me that as B distances himself my anxiety rises. It is an uncomfortable place to be. Sometimes it even makes me question my sanity because I tell him I am feeling the distance which he denies but then three weeks later at a therapy session he uses the words and admits that when x happened he distanced himself all the while denying my concerns for the past weeks.  It is a crazy way to live.

BEST QUALITIES

Recently, we had a dialogue question that asked each of us to talk about our partners best qualities as a parent. In the allotted 10 minutes I wrote about 7 qualities that B has that I think make him a great parent.

Now I know in dialogue you are not supposed to judge the other’s response because they are based on “feelings.” And feelings may be factually true or not but the bottom line is that they are what they are. So when B wrote about the qualities he admired that I had as a parent it basically came down to the fact that “I cared for my children.” To say I was hurt that this was the only quality he listed was an understatement.

Everyone cares for their children. You care for your dog. You care whether you have enough toilet paper in the house to last the entire week. Caring for your children really doesn’t get any accolades in my book. It is something we all do… even badgers, skunks and probably even one-cell amoebas.

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So I took this to my therapist. She wanted me to write down what I wished he had said about my good qualities as a parent. Here goes:

  1. I wish he had said that I am good about seeing or initiating those deep soulful and meaningful talks when they need them to boost their confidence, understanding of life or just need to express their concerns. I wish he had said he knew that most of the time they seek me out which shows that they trust my love and advice.
  2. I wish he had said that I love my kids fiercely and deeply and that they know that they can count on that love and can trust me to be there for them forever.
  3. I wish he had said that my children know I believe in them and that I think that they can accomplish whatever it is that they set out to do and that by knowing this it will take them far in life.
  4. I wish he had said that he knows I am their biggest fans and that I cheer them on with encouragement when they are lacking the spunk to make that “final touchdown” in whatever it is they are doing.
  5. I wish he had said I am a “good” parent far more often than a “bad” one and that even when I fail it is not intentional or malicious.
  6. I wish he had said that raising six kids, two of whom have autism, would be a tough job for anyone and that it is amazing I don’t lose it every day.
  7. I wish he had said that my kids had experienced so much of this world thanks to me and that if it was left to him they would not have.
  8. I wish he had said that I try my best to teach them the important things that they will need to navigate their lives now and in the future.
  9. I wish he had said that I am “good enough” parent some of the time (which is okay) and a great parent when it really counts.
  10. I give good hugs.
  11. I wish he had said that I encourage my kids to take risks which creates opportunities for them to believe in themselves.
  12. I wish he had said I am an honest parent in dealing with my kids and all the people we have to deal with because of their interests and their issues and that my honesty helps provide desperately needed clarity.
  13. I just wish he had said I am a good mother and he could not manage without me.

And while this exercise was difficult because I kept wanting to explain or add in the negative to balance it all out, I didn’t because this is my gift to myself and a tribute to who I am as a parent. I don’t NEED B to validate it…but it would have been nice.

Breaking Records

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I’ve lived with autism for 16 years. I have yet to understand it. Take Andre. High school student who is also taking college classes and getting A’s and B’s. Smart, right? Then why can’t he change his underwear?

Seems to me that he is on some sort of record-breaking quest because recently I have noticed a pattern which I am sure Guinness World Records would love to have a stake in.

Record Breaking Attempt #1.

Number of Days Between Showers….SIX

Yes, six stinky days. Believe me, it’s not that we are willing participants in these record-breaking attempts. It’s just that life gets in the way. Often we take notice after Andre walks by smelling like road kill and the following conversation ensues:

“Honey, when was the last time Andre took a shower?”

“I don’t know. I thought it was your month to remember all his idiosyncracies.”

“No, my month was last month. This is your month.”

“No, last month I caught him hiding cookies in the downstairs bathroom so he could have a snack when he was on the toilet. It is definitely your month this month.”

And then all is revealed when little sister pipes up with:

“Well this week is my week to clean the bathroom and he hasn’t been in there once!”

AGGGGGG…epic parental fail.

AGAIN

Record Attempt #2.

Number Of Days Without Changing Underwear…..SIX

Yes, I am at fault here. I forget that an almost 6 foot tall person may need reminders to change his underwear EVERY SINGLE DAY. The lazy mother in me is tempted to teach him to turn his skivvies inside out in order to get a few more days use out of them but butt skid marks on the outside just look worse than skid marks on the inside so I am going to let this one ride.

Record Attempt #3.

Number Of Days Gone By Without Brushing Teeth……FIVE

I know this to be true because we just returned from a holiday where I put his toothbrush in his bathroom. On the last day I asked him to go get his toothbrush so I could pack it.

“Toothbrush? You brought my toothbrush with us on vacation? Why would you bother…its our vacation.”

At home I have signs up as reminders to brush his teeth. I have placed multiple toothbrushes in multiple locations. Even at the kitchen sink. And I think that is the problem. There are so many around that, just like dust bunnies, pretty soon they just begin to blend into the scenery. Sadly, little sister who brushes her teeth numerous times a day has cavities galore. Andre…not one. Ever. He is the Anti-Christ of the American Dental Association.

 

Record Attempt #4.

Number Of Times Per Day “I DON’T Wanna” is said. 1,440 x2=1880. That is about every 30 seconds.

“Time to go.”

“I don’t wanna.”

“Did you brush your teeth?”

“I don’t wanna.”

“I think you better start on your homework.”

“I don’t wanna.”

Clean your room. I don’t wanna. Take out the trash. I don’t wanna. Take a shower. I don’t wanna. Come eat breakfast. I don’t wanna. Find your shoes. I don’t wanna.

And so it goes.

I admit, that these things, while annoying, are definitely not life-threatening. YET. But that is exactly the point. Because one day we will no longer be on this earth to monitor (even half-assed) Andre’s idiosyncracies and our fear is that one day his mummified body with rotten teeth laying nearby, will be found in year-old underwear, crushed under piles of pizza boxes and food wrappers that he refused to clean up. And like global warming; we don’t know how to stop this slide toward disaster.

The one positive thing about all this record-breaking talk is that it has spurred me on to try to break one myself.

Record Attempt #1.

Number Of Days I Remain Consistently Sane

I’m going for….

ONE

 

 

 

 

 

You Say You Love Me But…

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You know my story. Three homegrown kids, three adopted from Korea. Two with autism and other disabilities. You know how hard we have worked to create this family by pouring our souls and our finances into getting exactly what our children need to succeed as they inch closer to becoming tax-paying adults.

You have been with us through our pregnancy issues and through our long and precarious adoption processes. You have stood beside us we were challenged to take on the school system and the medical establishment. You listened to my tears on those days where hour-long meltdowns were a common place occurrence and when our hearts were broken by  diagnoses that initially seemed as if they would be impossible to traverse. (They weren’t).

This YOU I am referring to is…you… my aunts, uncles, cousins, brothers, sisters, and best friends. The people I have known and loved for a life-time.You… the people who have stood by my side through thick and thin for so many years. You…the people who have treated my kids like their own. I adore you, but at this moment in time, I must confess that I am confused. You tell me you me and love all of my children equally.  You assure me my boys are amazing. You also say that my daughters are intelligent and talented young women. And you tell me you would like your Caucasian son to marry my Asian daughter someday.  And yet, you also tell me you are voting for Trump. I just cannot wrap my head around this because the YOU that I know cares deeply about others and asks WWJD?

And so I have to ask, how can you vote for a man who makes fun of people with disabilities? People like my children who struggle for acceptance. Individuals, who like my boys, just want the same opportunities as those who aren’t in wheelchairs and are sighted. You of all people know of our family struggles because you have held my sons hands when they were sobbing because they have been bullied, yet again, and you were livid at the way they had been treated. Yet, you support a MAN who should know better yet makes fun of the disabled anyway. Where is your righteous anger at him?

You know that there are millions of disabled in this world who are thrown off public transportation or denied jobs because of their autism or missing limbs. We’ve talked about this and you have expressed your dismay. So why is it that you do not understand that if the leader of the USA bullies the disadvantaged, that he setting the framework for how we are to treat one another? That Trump is, in effect, telling the school yard bully that it is okay to intimidate your kid and anyone within arms reach . Don’t you realize that these kinds of hurtful/shameful behaviors will increase and once again reach into my home? The home of people that you say you love!

Why would you support a man who promotes bigotry and hatred especially when you know that this increases the chances of MY children being hurt or killed by people who profess a dislike for those that are “different” from them? You’ve heard other children call my kids “Chinese eyes” as they pulled back on their own, mocking them, and trying in some way to make them feel “less than.” You have seen first-hand the hurt in my children’s eyes and their confidence shattered. Why would you throw your weight behind someone who promotes the worst in human behavior instead of the best? Why would you stand behind someone who promotes an “us vs. them” mentality that will be divisive instead of uniting? And when this promotion of hatred undoubtedly explodes into something unfathomable will you willingly acknowledge the blood on your hands because you stood with the man who was promoting it?

As if the above was not enough; what I really don’t understand is how you can support a man who disparages women, cheats on them and makes inappropriate sexual remarks about them. We all have mothers, sisters, and daughters that we value and love. If your mother or daughter was being treated in a disrespectful manner or subjected to sexual harassment by their boss or a man on the corner would you laugh about it and dismiss it the way you do with Mr. Trump? I would hope not because if you do what kind of person does that make you? Seriously. THINK ABOUT IT.

I could go on about Mr. Trump not paying small business people which quickly puts them out of business. And I could wonder why you would elect someone who can’t keep his own financial affairs in order and refused to rent to people of color. And I could wonder about a man who cheats on his spouse, lies under oath, and takes only the best for himself. But what I really care about is how Trump treats others… and that is what worries me. He acts as if he is entitled…. to dismiss reporters doing their job… to tease people who are different from him…to bully women and minorities while promoting discord and hate. These derogatory ways of treating others are the signs of a man who has lost his sense of humanity, his ethics, and his ability to promote and live in a virtuous manner. He is a man who lacks the understanding that most people are not born in the lap of luxury that he was and has no clue of what it is like to live the way most people do. He didn’t earn his wealth. It was inherited. Why would you vote for someone who is that out of touch with you and your situation?

So, when November rolls around and you go to cast your ballot, before you do, I want you to think about my children and how much you love them. I want you to remember all the wonderful women in your life. I want you think about the disabled, the poor, the elderly, and all the people who you respect and love who do not look like you. And consider this… that a vote for Trump is a vote against people like me who love their children with challenges. A vote for Trump is a vote against all the females in your lives. And a vote for Trump is a vote against kids who do not have the same invisible privileges that their white parents do. So think of me when you vote. Consider why I might be fearful for all those beautiful faces within my family if you vote for this Republican. Please… just yourself in my shoes… because someday you or a loved one might be walking in them.

“Principles of justice are principles that rational, self-interested people would choose to govern the society in which they were going to live, provided that they did not know, at the time they chose the principles, exactly what their own place in society would be.” – James Rachel’s forward  to John Rawl’s  book, Two Concepts of Rules.

On Giving Love When You Have None Left To Give

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Sometimes my house is pure 100% chaos. Sometimes it is as quiet as a lamb. Most of the time it is somewhere in between. But then there THOSE TIMES; the times when Andre digs in and NOTHING I can do will change the trajectory that we are about to embark on.

Change for Andre is difficult. It often is for those on the autistic spectrum. Sometimes that change is as small as using grape jelly as opposed to strawberry on Andre’s PB&J. But more often it is something along the lines of telling him to do his chore.

“Andre you need to empty the dishwasher!” (for the third time)

“I dun’t want to”

“There are lots of things I don’t want to do either but they must be done so empty the dishwasher. NOW”

“I dun’t want to”

This I dun’t want to would go on 100 times if I permitted it. Usually at this point the conversation will escalate to one more warning. Then I head upstairs (with him trying to stop me…pulling on me or poking at me) and take all of his electronics and tell him that he can have them back when his chore is done.  This is followed by ten minutes of attempted manipulation, threats (I’ll put your phone in the sink if you don’t give me back  my stuff) and flat out increased defiance. Finally, Andre will realize that he has gone too far and then resorts to such things as:

“Tell me you love me mom”

“I need love. Give me a hug NOW.”

I want a kiss NOW”

Along with all the demands he begins hanging all over me DEMANDING a hug or a kiss by clawing at me.

Of course, by this time I am worn out and tired of the CRAP. I try to remember where this is coming from inside his head (fear of abandonment/fear of being unlovable/anxiety) and react accordingly. But there are times when giving him what he needs (a hug) feels so ugly and disingenuous after all the chaos and manipulation that I find it hard to wrap my arms around him. I find it hard to find a place in my heart to grant him the grace that he needs. Most of the time I manage to dig it up from G** knows where but there are times it is almost impossible to find and it is at those moments when I feel like I have been swallowed whole, the best parts of me ripped out and flung far and wide. It is at these times when I start crucifying myself for not being able to give my son what he needs because it is such a little thing that feels so big.

Luckily, most of the time I do not get to this place of self torture because as I start to fall down the rabbit hole; I get ensnarled in the tree roots and find a foot hold to make my way up again. But there are times that I would like to keep falling down that rabbit hole just to feel the impact upon landing. To feel the brokenness that results. And when that happens it makes me realize that is probably what Andre is feeling (the impact) and then I find I can go over and give him that hug. A hug that will ultimately mend us both. A hug that that tells him that I love him and he loves me and that we are in this thing called autism together. Forever.

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