Unicorns And The Republican Health Care Plan

I just had to write about a friend’s post on Facebook and what it digressed into.

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Comment One: “I bet unicorns have better insurance than we do!”

Comment Two: “They aren’t covered. Having a horn is a pre-existing condition!”

Comment Three: ” No…a horn too much resembles erect penis…they love those!”

Comment Four: “You’re right, a horn does resemble an erect penis and they cover those…except in the case of Fred and Mary Trump and that was truly an uncovered disASSter!

 

RT

 

Congressional Rat Basturds

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Queen of Hearts

10 Minute Poem Challenge

 

QUEEN OF HEARTS

You tell me you want to keep our love alive

I tell you I want to be free

You want me to hold your hand

Until you’ve decided to be rid of me

You think that you have the advantage here

Your game so neatly played

You have counted on that fistful of hearts

Resting so neatly in your hand

To win this lovers game

You’ve used your charms quite nicely

Much like a card-counting pro

You think you hold all the cards

But I am now a worthy foe

The surety of my love for you

You mistakenly believe

Binds me to you forever

And to the rules of this game

But now I hold something more important

Than your Queen of Hearts

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Confident she’ll win the game

Thinking you have me beat

But I hold onto my dignity tightly

And play this hand so sweet

In the guise of the lowly 2’s

I use them 2 walk away

2 reject the “love” you feel for me

2 let peace fill my heart

2 feel my emotions again

2 laugh in the face of disappointment

2 love deeply even if it is not you

And instead of loving the game

That we are used to playing

I find a new understanding

That I hold the cards this time

And the heart no longer rules

But bends to the lowly 2

So I lay down my hand

And  quickly walk away

No longer do I turn and look back

I keep my eyes straight ahead

For I have finally won this hand

The game is surely dead

There are no winners here

No winner take all

But finally I have found myself

And once again stand tall

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Complacency

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Throughout almost my entire life I have often taken on what I have “perceived” as injustice. I have fought to change things within the school system for my kids.I have tried to protect my patient’s autotomy and rights. I have stood alongside like-minded people as we protested for change. I have said the “unpopular” thing that has needed to be said but few wanted to. But all of this concern comes with a price. It extracts a huge part of the stillness and the gentleness that you need to go through life without going crazy.

When I was younger I used to look at older folks and wonder why they had gotten complacent and just accepted the status quo. I swore I would never be like that…but I am becoming that way and frankly I think that I might want to. Because the amount of energy I expend trying to right the wrongs is tremendous and I just can’t afford to do that anymore if I want to stay sane and live a peaceful existence.

This reflection is a result of last night when I attended the annual contract signing meeting for our diving club. Sure it’s a small blip in the scheme of things but I had concerns that the owner was not coaching our children as much as was expected/promised and she is the expert as well as a judge. She knows her stuff but she has a habit of blowing off parental concerns or saying things will change and she is not held accountable so nothing changes. So in the meeting I stated that she had missed at least two rotations of 50% of the practices which caused a big to-do with some of the other parents. We are paying a lot of money for these lessons and I want to be sure that what is promised is actually being delivered…which it is not.

Needless to say, I went home totally stressed and disappointed. Some of the parents who felt the same way did not have my back like promised. Sadly, in the end I accomplished nothing and pissed off some people because they are YES men to the owner of the club. And of course there is the unspoken feeling that if you say something it will effect your child’s coaching.  SIGH.

Last night I didn’t sleep well. I tossed and turned for hours and I woke up feeling stressed and unhappy that I took on something that needed to be said but will be paying a price for it.  My peace of mind is disrupted and the “happy place” I have been cultivating inside me for the past year feels anything but. And if I am honest, when I look back the amount of time I have spent fighting the “system,” whatever it may be, has most often not produced the results I had hoped for. And so I have concluded that I must stop fighting the fight because it is so disruptive to my own soul.

I would like to think that despite all of this I will do the right thing if called upon. I think we all do. We like to imagine that we would be the ones hiding our fellow Jewish citizens in our attics should the need arise. But yet, I have to wonder if complacency in the small areas of life soon reach into the larger and more important ones. I wonder too if complacency makes us lazy, afraid, and unwilling to risk our own comfort for a greater and far more important purpose; if it becomes our new a comfortable norm.

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And so today, I am leaning towards incorporating complacency in my life which essentially to me means putting my comfort ahead of everything else and sticking my head in the sand.  It means not rocking the boat, not championing a cause and not trying to fix things. For it appears to me that if you want to cultivate some sort of inner peace you can not do these things.

Frankly, complacency scares and disappoints me, but at my age, unfortunately, so does the fight.

 

 

 

 

Raw

I read a few of my writings to him

He was hurt and upset

Believed my words and thoughts were raw

He said:

“Why didn’t you let me see these

Before we went into the therapists office

Why would you save this for in there?

Why didn’t you let me see your words and let me

think about them before going in?”

I think:

It’s suppose to be a safe place

Exactly where we are suppose to take

Our deepest hurts and fears

Where we have someone to help us

Through the words and through the tears

He thinks:

Why did you ambush me?

It’s his real question

Unspoken with words

But spoken just the same

I think:

Maybe I just want to hear from your heart

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And not listen to your rehearsed

Very logical answers

Maybe I long to know

What you really FEEL not THINK

To hear words spoken from the heart

Not encased in the laughter you use

To deflect the feelings that threaten

To overwhelm you like a bad case

Of poison ivy

I am:

Guilty and sad that I hurt him

Wishing that I could say with words

The things I so easily write on paper

Perhaps they would be less complex

And easier to hear

But I am not sure that words are whats needed now

Maybe its deep feelings

Because we both want to run from them

Instead of dealing with the pain they contain

I know:

I still love him

That it hurt me deeply to hurt him

Even if that was not my intention

My intention was to be HEARD

And I wish I could take back the words

I said because I don’t want to see

Him retreat

Because of my pain

And his pain

Because really he just wants peace, love and rainbows

Happiness and joy

He claims he is a simple man

Uses it as an excuse

Not to touch those parts of him

That make him feel vulnerable and afraid

He says:

He is a simple man

But we both know better than that

 

 

 

IEP Services From The School District

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For years we have been fighting our local school district to get our son what he needs in order to learn. Comprehension is sometimes difficult and math often impossible. We have watched him struggle to learn things that others grasp without effort while the school district ignored our concerns. Yet, if he is taught using particular methods he is often able to do the work that is required. Unfortunately, we do not yet know some of the methods that he would benefit most from.

We first realized he was having difficulty with math in first grade. We brought it to the attention of the IEP team. Our concerns were dismissed. In second grade, “It just takes some kids longer.” In third grade, “So he won’t be at the top of his class in math. (Yeah, duh!)” We then paid for him to go to an after school program at the cost of over $400 per month to learn his multiplication tables which the district could not manage to teach him. In fourth grade, he really started slipping but it was “Well, we can’t do anything now because he isn’t failing.” The rage I felt was immense. We were trying to be proactive but the district wouldn’t take our son’s lack of being able to understand and apply concepts seriously. By fifth grade they couldn’t quite ignore it anymore but their solutions and IEP goals were meaningless. He is now in 8th grade and doing math at a 4th/5th grade level. SIGH. I can also say the pathway has been similar for reading and comprehension but not as difficult or severe. In retrospect, the things we would do differently are numerous including taking the school district to Due Process. But the end result is that we have refused to sign his IEP for more than two years and continue to work with an outdated one.This, of course, is beginning to make the district nervous for what it means for them should we instigate legal action.

One of the things we have been fighting for is a GOOD educational/cognitive/psychosocial assessment of our son as we have disagreed with the district’s findings. We feel this is the best way to discover the issues that are effecting his learning and how he needs to be taught to reach his full potential. We have had a well-known and respected doctor in mind to do this assessment who specializes in kids with multiple “things” going on and have been fighting for the district to get him seen by him. Thus far the school district has refused citing their policy (which is illegal, BTW) that IEE’s must be performed within 60 miles of our home. If you understood where we are located you would also know that these types of services are not available here.

It has been a long, hard road with often disappointing results and constant stonewalling from our school district. But after all this time we were just notified that they have agreed to this testing and with it comes a very belated victory for our child which has cost him dearly due to these very purposeful tactics and delays.

Unfortunately, no family should have to go through this. Yes, we have at times hired a lawyer to push our case but the cost is immense and we see very little action for the money spent. School districts often stonewall because most parents cannot afford legal services, they don’t understand the law and districts know that most parents get weary of fighting “the machine” and give up. It’s hard not too. When you are already struggling at home because of the way your children’s disabilities impact your home life taking on a huge school district seems impossible and the educational system counts on that. Yet, by not doing right by our children it puts a future drain on our economy because these kids get discouraged by their lack of understanding/comprehension/accomplishment and drop out of school. They then face a life-time of unemployment or underemployment and the use of social services that could have most likely been avoided had they had some measure of success in school. Prison and gang activity is also a direct measure of the failure of the educational system.

I wish I could say it has been easy but I can’t. In fact, fighting this battle against the local school district has contributed to our ‘almost divorce.’ But I do urge all parents out there to continue to fight for their children’s place in the educational system. I have to believe that eventually we will make a difference.

 

 

Hollow Victory…311 Days to Fix This

We talk all day

We talk all night

Maybe that’s good

Maybe not right

Seems I am trying to force

An outcome

Instead of sitting in the silence of what isimages

And letting what happens…happen

On its own

Without my input

Or any artificial colors, preservatives or (l)dyes

But there is a major problem…

I don’t do limbo well

THEN

In the morning you come to me

Phone held tightly in your right hand

You show me your password

I turn my head

I don’t want to see

A hollow victory

For the sadness that lives in the lines around your eyes

The numbers mean nothing to me anymore

Why I ask? Why are you doing this?

It really doesn’t mean anything to me, he replies

But it means the world to you

It’s a small thing to do

When it is such a big hurt to you

And when he smiles

Some of the sorrow leaves the lines around his eyes

And I feel guilty for putting it there

For fighting for our marriage

Causing lines, scars, tears, misery

Refusing to give in to our marriage’s premature death

Refusing to pick out a casket

For today I see life and love

And I know we are okay for this moment

And that’s enough for me

Right now